HEAR THEIR VOICES
On World Hemophilia Day, let’s come together to show our support for the millions of women and girls affected by bleeding disorders.
If you’re aged 13-30, have a bleeding disorder, carry the gene or are a sibling: Get some seriously good information.
Ask questions, even ones you've been too embarrassed to ask.
Take part in competitions and polls.
Comment on other peoples stories.
Travelling to Japan
Heidi's Red Cake Day Event
The 2017 Rare Disease Day theme is “Research”.
On 28 February 2017, people living with or affected by a rare disease, patient organisations, politicians, carers, medical professionals, researchers and industry will come together in solidarity to raise awareness of rare di...
The HFQ community camp is coming up, if you live in Queensland this is for you!
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