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Upcoming Events

Feb 28

Rare Disease Day

The 2017 Rare Disease Day theme is “Research”.

On 28 February 2017, people living with or affected by a rare disease, patient organisations, politicians, carers, medical professionals, researchers and industry will come together in solidarity to raise awareness of rare di...

Apr 14

HFQ Community camp

The HFQ community camp is coming up, if you live in Queensland this is for you!

Apr 17

World Haemophilia Day


On World Hemophilia Day, let’s come together to show our support for the millions of women and girls affected by bleeding disorders.

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