Stories
Read stories from people just like you!
Read stories about boys, girls, treatments, sports, working and travel!
Youth at the Conference
Thu 7 Dec 2023
Adam, Alan and Cassie talk about their experiences at the 2023 Australian Conference.
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My amazing travel adventure
Wed 20 Sep 2023
Jack talked to HFA about travelling overseas and managing his haemophilia for some amazing trips!
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A message to your younger self
Thu 29 Jun 2023
If you could go back in time, what would you say to your younger self? Some thoughts from our community leaders.
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Tips to Alleviate Anxiety
Mon 15 May 2023
Monique from Beautiful Minds shares her tips and techniques to help alleviate anxiety.
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The changing world of new treatments
Mon 1 May 2023
What's changed in haemophilia treatments? Listen to the stories of people of all ages in the Australian haemophilia community as they describe ...
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Being involved - a great way to meet people
Mon 16 Jan 2023
Willem chats about being part of his local community, making friends and trying out new skills.
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Haemophilia - the spice of life
Mon 12 Dec 2022
Willem spoke to us about working, exercising and being out and about in these days with new treatments.
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Becoming a youth leader
Wed 14 Sep 2022
Chris speaks about being a youth leader with his local Haemophilia Foundation, camps, catch-ups and life with haemophilia these days.
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Getting stronger
Wed 15 Jun 2022
Gavin talks about growing up with haemophilia and what he has learned about developing his strength and resilience.
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Getting the message out
Tue 22 Feb 2022
Adam has severe haemophilia A. He explains why he is involved in raising awareness at his school and in his local community.
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Growing up with von Willebrand disease
Tue 14 Dec 2021
Simoni tells her personal story of growing up with the challenges of type 3 (severe) VWD.
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Growing up with haemophilia
Mon 18 Oct 2021
Dale grew up with haemophilia A, but he never let it stop him from doing anything.
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How changing treatments has changed Scott's world
Wed 13 Oct 2021
Scott shares how changes to his haemophilia treatment have made it possible for him to do more.
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Facing my fear of needles
Sun 19 Sep 2021
Bailey explains how he dealt with the challenge of infusing his treatment when he had a fear of needles
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Dealing with life changes
Wed 30 Jun 2021
Darren has severe haemophilia. He talks about dealing with life changes when you are young and have a bleeding disorder.
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The power of music
Thu 27 May 2021
Lenny tells his compelling personal story about overcoming the complications of haemophilia and how music and new treatments have changed his life
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Managing work and a career
Fri 21 May 2021
In these videos, young people with bleeding disorders - and some not so young - talk about their experiences with work and choosing a career
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Working out a new approach
Thu 22 Apr 2021
In this video Tim talks about why he took on body building as a teenager and how fitness has become an important part of his life.
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Rare and embracing independence
Sun 28 Feb 2021
Belinda talks about her journey to tackle life independently with factor X (10) deficiency.
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Sport and getting fit
Wed 10 Feb 2021
Sport, exercise and motivating young people with haemophilia, VWD and other bleeding disorders to keep fit were the topic of a lively HFA webinar.&...
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Climbing Mount Everest with haemophilia
Fri 11 Dec 2020
Chris Bombardier tells his inspiring story of climbing Mount Everest with severe haemophilia - and why he took on the challenge.
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Feeling so passionately about physical exercise
Tue 8 Sep 2020
Tim Demos has severe haemophilia A and has been working full time as a paramedic for the past 5 years.
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Staying motivated with exercise
Mon 10 Aug 2020
Andrew Selvaggi shares what he has learned about staying motivated with exercise, with his inspiring story about turning his life around and his ti...
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My brothers have haemophilia
Thu 16 Jul 2020
I’m Angelina, I’m 16 years old and currently in Year 11… And I have two brothers with severe haemophilia
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Pat's story
Tue 30 Jun 2020
Successful management of haemophilia is key to playing competition sport, but for Pat it wasn’t always that easy.
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Coronavirus (COVID-19) - what you need to know
Sun 22 Mar 2020
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This might just be me here
Wed 11 Mar 2020
At the recent national Conference in Sydney, some youth delegates took time out to share their experiences for the HFA Digital Stories project.
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Managing my VWD
Mon 13 Jan 2020
Shauna tells her story of her experiences with Type 3 VWD and how she has managed the challenges she has faced
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What's the risk?
Mon 16 Dec 2019
The debate about risks at the 2019 Australian Haemophilia Conference
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Rock climbing challenge
Sat 14 Dec 2019
Australian brothers Andrew and Scott and taking on the Yosemite climb in California
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Playing competition wheelchair football
Fri 4 Oct 2019
Joe Chivers tells his story of playing elite competition wheelchair football with VWD.
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Triathlons to Ironman
Mon 13 May 2019
Pat Kitschke, a 21-year-old with mild haemophilia from South Australia, has set himself the challenge of competing in the Cairns 70.3 Ironman th...... read more
Telling others at work
Mon 15 Apr 2019
Robbie shares his story of telling others at work about his haemoph...... read more
Building Communities
Mon 24 Sep 2018
Youth News - Starting Higher Education
Wed 13 Jun 2018
One of our youth leaders, Alan, who has severe haemophilia, spoke to us about his tips and tricks for surviving university.
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Alan's Story
Tue 17 Apr 2018
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Shauna's Story
Tue 17 Apr 2018
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Youth News March 2018
Wed 21 Mar 2018
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2017 Conference experiences
Thu 21 Dec 2017
Youth delegates at the 2017 Conference talk about their experiences
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Personal reflections on having a bleeding disorder & my amazing journey!
Tue 25 Jul 2017
Saravana Prasath Gajapathy is a participant in the 2017 Youth Lead Connect program. Saravana believes that sha...... read more
Pat's Go For It Grant Story
Tue 11 Jul 2017
The Haemophilia Foundation Australia’s Go for it Grants program assists people living with bleeding disorders take the first s...... read more
My work life balance
Tue 13 Jun 2017
Caleb talks with Hannah, Health Promotion Officer for Haemophilia Foundation Australia (HFA) about how he balances his busy life with work, umpi...... read more
Get involved in the community!
Tue 14 Mar 2017
Ben is a passionate leader in the bleeding disorders community, an active youth leader in Victoria and is part of their youth team at camps ...... read more
Part 1: Travelling to Orlando (Sam's Travels)
Wed 1 Mar 2017
Sam is a leader and mentor of the youth community across Australia and is involved with his local community through Haemophilia Foundation New S...... read more
Part 2: Travelling with haemophilia (Sam's Travels)
Wed 1 Mar 2017
Part 2: Travelling with haemophilia
Sam is a leader and mentor of the youth community across Australia and is involved with his local ...... read more
Part 3: The Congress (Sam's Travels)
Wed 1 Mar 2017
Part 3 - The WFH Congress
Sam is a leader and mentor of the youth community across Australia and is involved with his local community thr...... read more
Get out there!
Wed 1 Mar 2017
Travelling is one of the most rewarding experiences I believe you can have in life. It is important you don't let your haemophilia stop...... read more
Travelling to Japan
Tue 28 Feb 2017
Hello, my name is Sam, and, while some of you may know me, I’m sure many do not.
I woul...... read more
My umpiring talk in the community
Wed 14 Dec 2016
On Sunday the 26th of June, six young people with haemophilia attended the Australia Football League (AFL) round 17 to watch the...... read more
Heidi's Red Cake Day Event
Wed 7 Dec 2016
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Success from being a leader in the community
Tue 27 Sep 2016
Hamish is an inspiring youth leader from New South Wales and has been actively involved in the bleeding disorders community for many years. Hami...... read more
My journey of self-infusing
Tue 27 Sep 2016
Hamish tells the story of his self-infusing journey and how far he has come:
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Hamish's Youth Lead Connect story
Tue 27 Sep 2016
Hamish has been involved in the YLC program and has achieved his goal of being more organised in his work and personal life. Read more about his...... read more
Jayden's golf story
Wed 21 Sep 2016
Jayden is the recipient of a Go For It Grant to assist him with his study at West Virginia University Institute of Technology. He was awarde...... read more
Updates from Sam at the WFH World Congress
Wed 20 Jul 2016
Read about Sam's adventures at the WFH World Congress in Orlando here.
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Geoff at the ACT camp
Mon 27 Jun 2016
Geoffrey is an HFA youth leader and mentor. Geoffrey attended the HFACT camp in April 2016, was part of the planning committee and facilitat...... read more
Youth stories from the YLC program
Wed 9 Mar 2016
Lauren: The highlight of the weekend for me was definitely the empowering final session with Reach that taught me that leadership doesn&rsq...... read more
Growing up without haemophilia
Wed 20 Jan 2016
Nathan’s Story: Due to a late diagnosis of haemophilia my upbringing was heavily influenced by my sporting lifestyle. Coming fro...... read more
Youth stories from conference
Wed 4 Nov 2015
2015 marked the 17th Australian & New Zealand Conference on Haemophilia and Related Bleeding Disorders held on the Gold Coast. The yout...... read more
All about the youth session at conference
Mon 26 Oct 2015
The youth session at the 17th Australian & New Zealand Conference on Haemophilia and Related Bleeding Disorders discussed being on the ...... read more
HFA youth leaders speak up!
Mon 6 Oct 2014
Sam: I feel that it is important for young people to speak up and have their voices heard at focus groups and other events because the youth bri...... read more
Youth at the WFH Congress
Mon 14 Jul 2014
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Aloha
Fri 17 May 2013
Hi! I’m Hamish and on Sunday 20th March 2011 I arrived in Hawaii to take part in the 26th Annual Pacific Basin Music Festival, with 57 oth...... read more
A treatment story
Tue 11 Dec 2012
We all know Chris Gordon from his ‘Loving footy with a passion’ blog on Factored In. Now Chris talks to HFA about prophylaxis,...... read more
HFQ camp 2012
Thu 25 Oct 2012
Recently Haemophilia Foundation Queensland held their annual youth camp, at the Emu Gully Adventure Park just outside of Toowoomba. HFQ’s ...... read more
Choosing a career path
Thu 27 Sep 2012
Hi I’m Paul and I have severe haemophilia B which was diagnosed when I was five. When I was in high school I decided I wanted to be a trad...... read more
My many sports
Fri 7 Sep 2012
Hi, I’m Jack and I have moderate haemophilia type A. I have had to give up many of th...... read more
Swimming with the sharks
Mon 16 Jul 2012
I recently travelled to the beautiful country town of Exmouth in Western Australia’s North Coast as part of a radio competition my fiancé ...... read more
Never forgotten
Mon 16 Jul 2012
Hi, my name is Lauren. I am twenty one years old and the eldest of two children. My life is just like yours but I have a younger brother with se...... read more
Bonjour!
Mon 16 Jul 2012
Hi I‘m Richard and I have von Willebrand disorder. In 2010 I had the incredible fortune to win a Vision and Leadership Award as well as a ...... read more
A Story from the other side
Mon 16 Jul 2012
Let me start off by introducing myself – I’m Molly, I live in the western suburbs of Sydney, I have mild haemophilia A with levels b...... read more
How to make loads of new friends
Mon 16 Jul 2012
Hi Guys, my name is Lauren and I got involved with the Haemophilia Foundation when I started fundraising at my primary school in Grade 3. My brothe...
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Loving footy with a passion
Fri 22 Jun 2012
Meet Chris Gordon – a 22 year old guy who loves footy with a passion. Chris has been lucky enough to balance his dreams of playing footbal...... read more
Moving out of home
Thu 21 Jun 2012
Hi all, I’m Erin, a guy with mild/moderate haemophilia A. Like a lot of people around my age, I finished school, started working, made a l...... read more
Be kind to yourself
Thu 21 Jun 2012
I was diagnosed with VWD when I was 16 years old. I went to get checked out after having almost two years of violently heavy, erratic and u...... read more
Jenna at the 2016 WFH Congress
I was given the opportunity to attend and speak at this year’s World Congress in Orlando. This was my second Congress, after attending our...... read more
Latest three stories
Youth at the Conference
Thu 7 Dec 2023
Adam, Alan and Cassie talk about their experiences at the 2023 Australian Conference.
... read more
My amazing travel adventure
Wed 20 Sep 2023
Jack talked to HFA about travelling overseas and managing his haemophilia for some amazing trips!
... read more
A message to your younger self
Thu 29 Jun 2023
If you could go back in time, what would you say to your younger self? Some thoughts from our community leaders.
... read more
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