WFH Women & Girls Global Summit
Tue 22 Dec 2020
WFH staged their first ever
Global summit on women and girls with inherited bleeding disorders in November 2020.
Although the summit is now over, the recordings of sessions have been made available to the community. To watch the recordings now, you need to make a NEW REGISTRATION, unless you were already registered. Then use your email address and your last name to
login on the Summit website.
register and watch recordings of the Global summit sessions here (free and open to everyone!)
The Summit was an exciting two-day virtual meeting for women with bleeding disorders, patient organisations, doctors, nurses and other healthcare professionals and other supporters from around the world to exchange information and experiences. It covered diagnosis and management, how women are advocating for better care, and the ways they are getting their voices heard.
One of the speakers in the Summit was Australia’s
Susie Couper, who presented on the
international VWD (von Willebrand disease) clinical guidelines and how to use them. Susie has VWD type 1 and her son has VWD type 3. She was diagnosed as an adult when her son was diagnosed and she is currently on the HFWA Committee.
Susie has been one of the patient representatives on the committee to develop the international VWD clinical guidelines and is now a member of the WFH committee for women with inherited bleeding disorders. She is keen to share her experiences and said:
‘To be a member of the WFH committee is a deeply felt privilege. I am learning so very much along the way – lets learn together.’
Our thanks to Susie for her commitment to women, VWD, education and peer support both in Australia and internationally.
WFH’s Women and Girls Initiative was also launched at the Summit. HFA Executive Director,
Sharon Caris, interviewed key international leaders about what the Initiative will involve. The Initiative will support more education and training, both for health professionals and the community.
Watch Sharon’s interviews on the Summit website.
Last Reviewed: 22 December 2020