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What are the risks with sport for teenagers with haemophilia?

Growth spurts are a particularly risky time for teenagers. Common ages for growth spurts are around 13-14 years for girls and around 15-17 years ol...... read more

Is sport good for teenagers with haemophilia?

“Yes!.... BUT ... ” – there’s the typical answer from your parents or your Haemophilia Treatment Centre (HTC) team. So wha...... read more

I have a bleeding disorder and I’m really scared by the amount of blood I lose in my period. Last time I went through 6 super tampons and pads in a day and I felt like I was going to be sick and I was really dizzy and tired. When should I go to the emergency department in my hospital? When would I need a blood transfusion?

Having a very heavy period can be troubling and frustrating. It can be hard to manage the amount of bleeding, particularly if you have to change yo...... read more

I have read on the internet that my only option to control my bleeding issues is a hysterectomy. I don’t want to do that, because I might want children one day. What are my other options? Who can I talk to?

Although there is some good information on the internet, there is also a lot of information that does not apply to young women with bleeding proble...... read more

What is the pre-pregnancy planning for factor XI (11) deficiency?

Question: I am a female with factor XI (11) deficiency (haemophilia C) and at the stage of pre-pregnancy planning. Is it recommended to get genetic...... read more

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