What are the risks involved with playing rougher sports?
I am considering a rougher sport like rugby or Australian Rules, despite the risks. What do I need to know to manage these risks, and what injuries...
... read moreWhat sports do you think I should play?
There are many benefits from sports for children and young people with bleeding disorders. An important reason to be physically active is that it w...
... read moreCan young people with haemophilia go on to elite levels with their sports?
The short answer is YES. Usually. But there are a few questions to answer beforehand:Will the sport you are playing progress into a contact s...
... read moreWhat are the risks with sport for teenagers with haemophilia?
Growth spurts are a particularly risky time for teenagers. Common ages for growth spurts are around 13-14 years for girls and around 15-17 years ol...
... read moreIs sport good for teenagers with haemophilia?
“Yes!.... BUT ... ” – there’s the typical answer from your parents or your Haemophilia Treatment Centre (HTC) team.
So wha...
... read moreCan haemophilia be cured?
A cure for haemophilia has yet to be found, although current research is encouraging. Most research for a cure is based around gene therapy. Gene t...
... read moreBig bouncy vein problems?
Large veins can sometimes be deceptively hard to cannulate, it may be because the vein 'rolls' and the needle therefore misses. Sometimes i...
... read moreWhat are our ‘levels’ and how do they affect us? I have haemophilia B (factor IX deficiency).
Factor IX ‘levels’ is the amount of factor IX we have in our blood. The number is usually given as a percentage. Normal levels ra...
... read moreWhat makes our levels rise and fall? I have haemophilia B (factor IX deficiency).
If they continue to rise, and IF BY some miracle they reach 100% does that mean that my Haemophilia will be cured?”Your level of factor IX in...
... read moreWhat can you use for joint support?
Most joint support devices will offer only limited extra joint support (at best).
Having enough muscle stability and strength should be all ...
... read moreDo Vitamin tablets help strengthen our joints?
Question: Do Vitamin tablets/fish oil tablets, fish/tuna in general help strengthen our joints, which may or may not help our joints in regards to ...
... read moreWhat is the difference between haemophilia A and B?
Question: Is there a major difference between hemophilia A and hemophilia B or is it slight and what is the difference?The differences between haem...
... read moreShould I tell other people about my haemophilia?
Question: I have yet to tell people about my haemophilia because they already tease me enough as it is. So should I tell them or not because I don&...
... read moreAre there online apps for treatment diaries?
Question: Is there a way in which people can keep their treatment diary online? Good question!
You may have heard of the MyABDR app. This app...
... read moreI have a bleeding disorder and I’m really scared by the amount of blood I lose in my period. Last time I went through 6 super tampons and pads in a day and I felt like I was going to be sick and I was really dizzy and tired. When should I go to the emergency department in my hospital? When would I need a blood transfusion?
Having a very heavy period can be troubling and frustrating. It can be hard to manage the amount of bleeding, particularly if you have to change yo...
... read moreI have read on the internet that my only option to control my bleeding issues is a hysterectomy. I don’t want to do that, because I might want children one day. What are my other options? Who can I talk to?
Although there is some good information on the internet, there is also a lot of information that does not apply to young women with bleeding proble...
... read moreVein resistance when injecting treatment product
When the needle starts to enter the skin it gets more resistant almost half way through. Could that be angle or?Answer:
This is not an easy questi...
... read moreWhat is the pre-pregnancy planning for factor XI (11) deficiency?
Question: I am a female with factor XI (11) deficiency (haemophilia C) and at the stage of pre-pregnancy planning. Is it recommended to get genetic...
... read more