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Stories

Read stories from people just like you!

Read stories about boys, girls, treatments, sports, working and travel!

Girls

Growing up with von Willebrand disease

Tue 14 Dec 2021
Simoni tells her personal story of growing up with the challenges of type 3 (severe) VWD.... read more

Tips to Alleviate Anxiety

Wed 20 Oct 2021
Monique from Beautiful Minds shares her tips to help alleviate anxiety.... read more

Rare and embracing independence

Sun 28 Feb 2021
Belinda talks about her journey to tackle life independently with factor X (10) deficiency.... read more

Sport and getting fit

Wed 10 Feb 2021
Sport, exercise and motivating young people with haemophilia, VWD and other bleeding disorders to keep fit were the topic of a lively HFA webinar.&...... read more

Managing my VWD

Mon 13 Jan 2020
Shauna tells her story of her experiences with Type 3 VWD and how she has managed the challenges she has faced... read more

A Story from the other side

Mon 16 Jul 2012

Let me start off by introducing myself – I’m Molly, I live in the western suburbs of Sydney, I have mild haemophilia A with levels b...... read more

Be kind to yourself

Thu 21 Jun 2012

I was diagnosed with VWD when I was 16 years old. I went to get checked out after having almost two years of violently heavy, erratic and u...... read more


Latest three stories

Being involved - a great way to meet people

Mon 16 Jan 2023
Willem chats about being part of his local community, making friends and trying out new skills.... read more

Haemophilia - the spice of life

Mon 12 Dec 2022
Willem spoke to us about working, exercising and being out and about in these days with new treatments.... read more

Becoming a youth leader

Wed 14 Sep 2022

Chris speaks about being a youth leader with his local Haemophilia Foundation, camps, catch-ups and life with haemophilia these days. 

... read more

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Submit your story to Factored In

You can also upload a video and a photo, just make sure you look over and understand ‘read me first’!

READ ME FIRST

Please read this important information before you upload!

Under 18?

If you are under 18 and would like to upload a story, image or video that identifies who you are, we require your parent or guardian to send an email to factoredin@haemophilia.org.au stating that they give their permission for your story, image or video to be published. We have to do this for your privacy and protection. Or you parents can download this form and send it to us.

Anyone else under 18?

Also, if you are using a story, image or video that identifies someone else who is under 18, you will need to get their parents’ consent. You can ask their parents to email us at factoredin@haemophilia.org.au  or download this form and send it to us

Parents can simply copy and paste this into an email and fill in the blanks …
I, (parent/guardian name here) give permission for (son/daughter name here)’s story, image or video titled (put title here) to be published on Factoredin.org.au. I also give permission for HFA to reproduce the story/image/video in other HFA publications, reports or web site.

Identify anyone at all?

Finally, if you are using a story, image or video that identifies someone of any age, you will need their consent as well and they can provide this by emailing us at factoredin@haemophilia.org.au or downloading this form and send it to us.

Anyone over 18 can simply copy and paste this into an email and fill in the blanks …
I, (put name here) give permission for my story, image or video titled (put title here) to be published on Factoredin.org.au. I also give permission for HFA to reproduce the story/image/video in other HFA publications, reports or web site.

How can I get around this, I hear you ask? Don’t make yourself or anyone else identifiable!

This is the title of your story - get creative (don't just use your name!)



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