Stories

Read stories from people just like you!

Read stories about boys, girls, treatments, sports, working and travel!

Transition

Becoming a youth leader

Wed 14 Sep 2022

Chris speaks about being a youth leader with his local Haemophilia Foundation, camps, catch-ups and life with haemophilia these days. 

... read more

Dealing with life changes

Wed 30 Jun 2021
Darren has severe haemophilia. He talks about dealing with life changes when you are young and have a bleeding disorder.... read more

The power of music

Thu 27 May 2021
Lenny tells his compelling personal story about overcoming the complications of haemophilia and how music and new treatments have changed his life... read more

Rare and embracing independence

Sun 28 Feb 2021
Belinda talks about her journey to tackle life independently with factor X (10) deficiency.... read more

Telling others at work

Mon 15 Apr 2019

Robbie shares his story of telling others at work about his haemoph...... read more

Youth News - Starting Higher Education

Wed 13 Jun 2018

One of our youth leaders, Alan, who has severe haemophilia, spoke to us about his tips and tricks for surviving university.

... read more

Moving out of home

Thu 21 Jun 2012

Hi all, I’m Erin, a guy with mild/moderate haemophilia A. Like a lot of people around my age, I finished school, started working, made a l...... read more


Latest three stories

Becoming a youth leader

Wed 14 Sep 2022

Chris speaks about being a youth leader with his local Haemophilia Foundation, camps, catch-ups and life with haemophilia these days. 

... read more

Getting stronger

Wed 15 Jun 2022
Gavin talks about growing up with haemophilia and what he has learned about developing his strength and resilience. ... read more

Getting the message out

Tue 22 Feb 2022
Adam has severe haemophilia A. He explains why he is involved in raising awareness at his school and in his local community.... read more

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Please read this important information before you upload!

Under 18?

If you are under 18 and would like to upload a story, image or video that identifies who you are, we require your parent or guardian to send an email to factoredin@haemophilia.org.au stating that they give their permission for your story, image or video to be published. We have to do this for your privacy and protection. Or you parents can download this form and send it to us.

Anyone else under 18?

Also, if you are using a story, image or video that identifies someone else who is under 18, you will need to get their parents’ consent. You can ask their parents to email us at factoredin@haemophilia.org.au  or download this form and send it to us

Parents can simply copy and paste this into an email and fill in the blanks …
I, (parent/guardian name here) give permission for (son/daughter name here)’s story, image or video titled (put title here) to be published on Factoredin.org.au. I also give permission for HFA to reproduce the story/image/video in other HFA publications, reports or web site.

Identify anyone at all?

Finally, if you are using a story, image or video that identifies someone of any age, you will need their consent as well and they can provide this by emailing us at factoredin@haemophilia.org.au or downloading this form and send it to us.

Anyone over 18 can simply copy and paste this into an email and fill in the blanks …
I, (put name here) give permission for my story, image or video titled (put title here) to be published on Factoredin.org.au. I also give permission for HFA to reproduce the story/image/video in other HFA publications, reports or web site.

How can I get around this, I hear you ask? Don’t make yourself or anyone else identifiable!

This is the title of your story - get creative (don't just use your name!)




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