Stories

Read stories from people just like you!

Read stories about boys, girls, treatments, sports, working and travel!

Becoming a youth leader

Wed 14 Sep 2022

Chris speaks about being a youth leader with his local Haemophilia Foundation, camps, catch-ups and life with haemophilia these days. 

... read more

Getting stronger

Wed 15 Jun 2022
Gavin talks about growing up with haemophilia and what he has learned about developing his strength and resilience. ... read more

Getting the message out

Tue 22 Feb 2022
Adam has severe haemophilia A. He explains why he is involved in raising awareness at his school and in his local community.... read more

Growing up with von Willebrand disease

Tue 14 Dec 2021
Simoni tells her personal story of growing up with the challenges of type 3 (severe) VWD.... read more

Tips to Alleviate Anxiety

Wed 20 Oct 2021
Monique from Beautiful Minds shares her tips to help alleviate anxiety.... read more

Growing up with haemophilia

Mon 18 Oct 2021
Dale grew up with haemophilia A, but he never let it stop him from doing anything.... read more

How changing treatments has changed Scott's world

Wed 13 Oct 2021
Scott shares how changes to his haemophilia treatment have made it possible for him to do more.... read more

Facing my fear of needles

Sun 19 Sep 2021
Bailey explains how he dealt with the challenge of infusing his treatment when he had a fear of needles  ... read more

Dealing with life changes

Wed 30 Jun 2021
Darren has severe haemophilia. He talks about dealing with life changes when you are young and have a bleeding disorder.... read more

The power of music

Thu 27 May 2021
Lenny tells his compelling personal story about overcoming the complications of haemophilia and how music and new treatments have changed his life... read more

Managing work and a career

Fri 21 May 2021
In these videos, young people with bleeding disorders - and some not so young - talk about their experiences with work and choosing a career... read more

Working out a new approach

Thu 22 Apr 2021
In this video Tim talks about why he took on body building as a teenager and how fitness has become an important part of his life.... read more

Rare and embracing independence

Sun 28 Feb 2021
Belinda talks about her journey to tackle life independently with factor X (10) deficiency.... read more

Sport and getting fit

Wed 10 Feb 2021
Sport, exercise and motivating young people with haemophilia, VWD and other bleeding disorders to keep fit were the topic of a lively HFA webinar.&...... read more

Climbing Mount Everest with haemophilia

Fri 11 Dec 2020
Chris Bombardier tells his inspiring story of climbing Mount Everest with severe haemophilia - and why he took on the challenge.... read more

Feeling so passionately about physical exercise

Tue 8 Sep 2020
Tim Demos has severe haemophilia A and has been working full time as a paramedic for the past 5 years.... read more

Staying motivated with exercise

Mon 10 Aug 2020
Andrew Selvaggi shares what he has learned about staying motivated with exercise, with his inspiring story about turning his life around and his ti...... read more

My brothers have haemophilia

Thu 16 Jul 2020
I’m Angelina, I’m 16 years old and currently in Year 11… And I have two brothers with severe haemophilia... read more

Pat's story

Tue 30 Jun 2020
Successful management of haemophilia is key to playing competition sport, but for Pat it wasn’t always that easy. ... read more

Coronavirus (COVID-19) - what you need to know

Sun 22 Mar 2020
... read more

This might just be me here

Wed 11 Mar 2020
At the recent national Conference in Sydney, some youth delegates took time out to share their experiences for the HFA Digital Stories project. ... read more

Managing my VWD

Mon 13 Jan 2020
Shauna tells her story of her experiences with Type 3 VWD and how she has managed the challenges she has faced... read more

What's the risk?

Mon 16 Dec 2019

The debate about risks at the 2019 Australian Haemophilia Conference

... read more

Rock climbing challenge

Sat 14 Dec 2019

Australian brothers Andrew and Scott and taking on the Yosemite climb in California

... read more

Playing competition wheelchair football

Fri 4 Oct 2019

Joe Chivers tells his story of playing elite competition wheelchair football with VWD.

... read more

Triathlons to Ironman

Mon 13 May 2019

Pat Kitschke, a 21-year-old with mild haemophilia from South Australia, has set himself the challenge of competing in the Cairns 70.3 Ironman th...... read more

Telling others at work

Mon 15 Apr 2019

Robbie shares his story of telling others at work about his haemoph...... read more

Building Communities

Mon 24 Sep 2018

One of the goa...... read more

Youth News - Starting Higher Education

Wed 13 Jun 2018

One of our youth leaders, Alan, who has severe haemophilia, spoke to us about his tips and tricks for surviving university.

... read more

Alan's Story

Tue 17 Apr 2018
... read more

Shauna's Story

Tue 17 Apr 2018
... read more

Youth News March 2018

Wed 21 Mar 2018
... read more

2017 Conference experiences

Thu 21 Dec 2017

Youth delegates at the 2017 Conference talk about their experiences

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Personal reflections on having a bleeding disorder & my amazing journey!

Tue 25 Jul 2017

Saravana Prasath Gajapathy is a participant in the 2017 Youth Lead Connect program. Saravana believes that sha...... read more

Pat's Go For It Grant Story

Tue 11 Jul 2017


The Haemophilia Foundation Australia’s Go for it Grants program assists people living with bleeding disorders take the first s...... read more

My work life balance

Tue 13 Jun 2017

Caleb talks with Hannah, Health Promotion Officer for Haemophilia Foundation Australia (HFA) about how he balances his busy life with work, umpi...... read more

Get involved in the community!

Tue 14 Mar 2017

Ben is a passionate leader in the bleeding disorders community, an active youth leader in Victoria and is part of their youth team at camps ...... read more

Part 1: Travelling to Orlando (Sam's Travels)

Wed 1 Mar 2017

Sam is a leader and mentor of the youth community across Australia and is involved with his local community through Haemophilia Foundation New S...... read more

Part 2: Travelling with haemophilia (Sam's Travels)

Wed 1 Mar 2017

Part 2: Travelling with haemophilia

Sam is a leader and mentor of the youth community across Australia and is involved with his local ...... read more

Part 3: The Congress (Sam's Travels)

Wed 1 Mar 2017

Part 3 - The WFH Congress
Sam is a leader and mentor of the youth community across Australia and is involved with his local community thr...... read more

Get out there!

Wed 1 Mar 2017

Travelling is one of the most rewarding experiences I believe you can have in life. It is important you don't let your haemophilia stop...... read more

Travelling to Japan

Tue 28 Feb 2017

 Hello, my name is Sam, and, while some of you may know me, I’m sure many do not.

I woul...... read more

My umpiring talk in the community

Wed 14 Dec 2016

On Sunday the 26th of June, six young people with haemophilia attended the Australia Football League (AFL) round 17 to watch the...... read more

Heidi's Red Cake Day Event

Wed 7 Dec 2016
... read more

Success from being a leader in the community

Tue 27 Sep 2016

Hamish is an inspiring youth leader from New South Wales and has been actively involved in the bleeding disorders community for many years. Hami...... read more

My journey of self-infusing

Tue 27 Sep 2016

Hamish tells the story of his self-infusing journey and how far he has come:

... read more

Hamish's Youth Lead Connect story

Tue 27 Sep 2016

Hamish has been involved in the YLC program and has achieved his goal of being more organised in his work and personal life. Read more about his...... read more

Jayden's golf story

Wed 21 Sep 2016

Jayden is the recipient of a Go For It Grant to assist him with his study at West Virginia University Institute of Technology. He was awarde...... read more

Updates from Sam at the WFH World Congress

Wed 20 Jul 2016

Read about Sam's adventures at the WFH World Congress in Orlando here.

... read more

Geoff at the ACT camp

Mon 27 Jun 2016

Geoffrey is an HFA youth leader and mentor. Geoffrey attended the HFACT camp in April 2016, was part of the planning committee and facilitat...... read more

Youth stories from the YLC program

Wed 9 Mar 2016

Lauren: The highlight of the weekend for me was definitely the empowering final session with Reach that taught me that leadership doesn&rsq...... read more

Growing up without haemophilia

Wed 20 Jan 2016

Nathan’s Story: Due to a late diagnosis of haemophilia my upbringing was heavily influenced by my sporting lifestyle. Coming fro...... read more

Youth stories from conference

Wed 4 Nov 2015

2015 marked the 17th Australian & New Zealand Conference on Haemophilia and Related Bleeding Disorders held on the Gold Coast. The yout...... read more

All about the youth session at conference

Mon 26 Oct 2015

The youth session at the 17th Australian & New Zealand Conference on Haemophilia and Related Bleeding Disorders discussed being on the ...... read more

HFA youth leaders speak up!

Mon 6 Oct 2014

Sam: I feel that it is important for young people to speak up and have their voices heard at focus groups and other events because the youth bri...... read more

Youth at the WFH Congress

Mon 14 Jul 2014
... read more

Aloha

Fri 17 May 2013

Hi! I’m Hamish and on Sunday 20th March 2011 I arrived in Hawaii to take part in the 26th Annual Pacific Basin Music Festival, with 57 oth...... read more

A treatment story

Tue 11 Dec 2012

We all know Chris Gordon from his ‘Loving footy with a passion’ blog on Factored In.  Now Chris talks to HFA about prophylaxis,...... read more

HFQ camp 2012

Thu 25 Oct 2012

Recently Haemophilia Foundation Queensland held their annual youth camp, at the Emu Gully Adventure Park just outside of Toowoomba. HFQ’s ...... read more

Choosing a career path

Thu 27 Sep 2012

Hi I’m Paul and I have severe haemophilia B which was diagnosed when I was five. When I was in high school I decided I wanted to be a trad...... read more

My many sports

Fri 7 Sep 2012

Hi, I’m Jack and I have moderate haemophilia type A. I have had to give up many of th...... read more

Swimming with the sharks

Mon 16 Jul 2012

I recently travelled to the beautiful country town of Exmouth in Western Australia’s North Coast as part of a radio competition my fiancĂ© ...... read more

Never forgotten

Mon 16 Jul 2012

Hi, my name is Lauren. I am twenty one years old and the eldest of two children. My life is just like yours but I have a younger brother with se...... read more

Bonjour!

Mon 16 Jul 2012

Hi I‘m Richard and I have von Willebrand disorder. In 2010 I had the incredible fortune to win a Vision and Leadership Award as well as a ...... read more

A Story from the other side

Mon 16 Jul 2012

Let me start off by introducing myself – I’m Molly, I live in the western suburbs of Sydney, I have mild haemophilia A with levels b...... read more

How to make loads of new friends

Mon 16 Jul 2012
Hi Guys, my name is Lauren and I got involved with the Haemophilia Foundation when I started fundraising at my primary school in Grade 3. My brothe...... read more

Loving footy with a passion

Fri 22 Jun 2012

Meet Chris Gordon – a 22 year old guy who loves footy with a passion. Chris has been lucky enough to balance his dreams of playing footbal...... read more

Moving out of home

Thu 21 Jun 2012

Hi all, I’m Erin, a guy with mild/moderate haemophilia A. Like a lot of people around my age, I finished school, started working, made a l...... read more

Be kind to yourself

Thu 21 Jun 2012

I was diagnosed with VWD when I was 16 years old. I went to get checked out after having almost two years of violently heavy, erratic and u...... read more

Jenna at the 2016 WFH Congress

I was given the opportunity to attend and speak at this year’s World Congress in Orlando. This was my second Congress, after attending our...... read more


Latest three stories

Becoming a youth leader

Wed 14 Sep 2022

Chris speaks about being a youth leader with his local Haemophilia Foundation, camps, catch-ups and life with haemophilia these days. 

... read more

Getting stronger

Wed 15 Jun 2022
Gavin talks about growing up with haemophilia and what he has learned about developing his strength and resilience. ... read more

Getting the message out

Tue 22 Feb 2022
Adam has severe haemophilia A. He explains why he is involved in raising awareness at his school and in his local community.... read more

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Submit your story to Factored In

You can also upload a video and a photo, just make sure you look over and understand ‘read me first’!

READ ME FIRST

Please read this important information before you upload!

Under 18?

If you are under 18 and would like to upload a story, image or video that identifies who you are, we require your parent or guardian to send an email to factoredin@haemophilia.org.au stating that they give their permission for your story, image or video to be published. We have to do this for your privacy and protection. Or you parents can download this form and send it to us.

Anyone else under 18?

Also, if you are using a story, image or video that identifies someone else who is under 18, you will need to get their parents’ consent. You can ask their parents to email us at factoredin@haemophilia.org.au  or download this form and send it to us

Parents can simply copy and paste this into an email and fill in the blanks …
I, (parent/guardian name here) give permission for (son/daughter name here)’s story, image or video titled (put title here) to be published on Factoredin.org.au. I also give permission for HFA to reproduce the story/image/video in other HFA publications, reports or web site.

Identify anyone at all?

Finally, if you are using a story, image or video that identifies someone of any age, you will need their consent as well and they can provide this by emailing us at factoredin@haemophilia.org.au or downloading this form and send it to us.

Anyone over 18 can simply copy and paste this into an email and fill in the blanks …
I, (put name here) give permission for my story, image or video titled (put title here) to be published on Factoredin.org.au. I also give permission for HFA to reproduce the story/image/video in other HFA publications, reports or web site.

How can I get around this, I hear you ask? Don’t make yourself or anyone else identifiable!

This is the title of your story - get creative (don't just use your name!)




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