Stories

The power of music

Thu 27 May 2021
In this video about adapting to change, Lenny tells his compelling personal story about overcoming the complications of haemophilia, studying under COVID lockdown and how music and new treatments have changed his life.




Lenny has grown up with challenges not only from his haemophilia, but also from other disabilities he acquired through trauma at birth – problems that affect his eyesight and mobility, cause a build-up of fluid on his brain and a palsy, and other learning difficulties. His hearing, however, is acute and he has gravitated towards music as something he loves and now as his career.
 
This last year has been both difficult and exciting for him. He was working to complete his Bachelor of Arts degree in music and psychology, but COVID-19 restrictions meant that he had to participate on Zoom and with his sight problems, this made his group assignments difficult. When he explained his visual difficulties to his fellow students, they were more understanding and the experience of studying improved for him. He has now completed his course – a great achievement!
 
Another really positive change for him has been switching to a new haemophilia treatment. Because of his vision impairment, he had always relied on his parents to infuse his treatment and had a ‘massive needle phobia’. The new treatment is injected sub-cutaneously, under the skin, and is much less complicated. To Lenny’s delight and surprise, he is able to manage his treatment himself, which has meant a whole new independent life and future for him.

‘For me, life now feels more in control because I can self-infuse instead of relying on my folks.’

Thanks to Lenny for sharing his story.
 

Comments
Blog post currently doesn't have any comments.

Submit your story to Factored In

You can also upload a video and a photo, just make sure you look over and understand ‘read me first’!

READ ME FIRST

Please read this important information before you upload!

Under 18?

If you are under 18 and would like to upload a story, image or video that identifies who you are, we require your parent or guardian to send an email to factoredin@haemophilia.org.au stating that they give their permission for your story, image or video to be published. We have to do this for your privacy and protection. Or you parents can download this form and send it to us.

Anyone else under 18?

Also, if you are using a story, image or video that identifies someone else who is under 18, you will need to get their parents’ consent. You can ask their parents to email us at factoredin@haemophilia.org.au  or download this form and send it to us

Parents can simply copy and paste this into an email and fill in the blanks …
I, (parent/guardian name here) give permission for (son/daughter name here)’s story, image or video titled (put title here) to be published on Factoredin.org.au. I also give permission for HFA to reproduce the story/image/video in other HFA publications, reports or web site.

Identify anyone at all?

Finally, if you are using a story, image or video that identifies someone of any age, you will need their consent as well and they can provide this by emailing us at factoredin@haemophilia.org.au or downloading this form and send it to us.

Anyone over 18 can simply copy and paste this into an email and fill in the blanks …
I, (put name here) give permission for my story, image or video titled (put title here) to be published on Factoredin.org.au. I also give permission for HFA to reproduce the story/image/video in other HFA publications, reports or web site.

How can I get around this, I hear you ask? Don’t make yourself or anyone else identifiable!

This is the title of your story - get creative (don't just use your name!)




Have you used images or music?:

Security Code:


Search Stories by Category

Other